Sunday, October 06, 2013

Hmm, well ok...

So, while my MS is really quite "benign" according to my Neuro, and as dean of the school of medicine I hope he'd know, we're thinking of maybe starting Tecfidera. His point, and it is good, I'd that at 43 (as of 10/2), I'll be living with MS a loooong time, potentially. I think we're both sure I won't always be doing well.

I'm more concerned about cognitive issues, though. The ocrelizumab I had in the clinical trial still seems to be having some good effects, though still chronically tired. I'm not sure what to think about the new drugs, either. He likes their results, I don't like having to take them forever.

That's whiny, I know. But I'm entitled. I don't see him for four months, so there's time, and maybe being back home is enough for now to calm my jangled nerves.