Sunday, October 06, 2013

Hmm, well ok...

So, while my MS is really quite "benign" according to my Neuro, and as dean of the school of medicine I hope he'd know, we're thinking of maybe starting Tecfidera. His point, and it is good, I'd that at 43 (as of 10/2), I'll be living with MS a loooong time, potentially. I think we're both sure I won't always be doing well.

I'm more concerned about cognitive issues, though. The ocrelizumab I had in the clinical trial still seems to be having some good effects, though still chronically tired. I'm not sure what to think about the new drugs, either. He likes their results, I don't like having to take them forever.

That's whiny, I know. But I'm entitled. I don't see him for four months, so there's time, and maybe being back home is enough for now to calm my jangled nerves.


Kim @ Stuff could... said...

Many of my MS friends are taking the new techfidera? drug...I worry about long term too but I need the MS to stay quiet so it does not do anymore damage

Doc said...

I hear you. It's a weird balance to have to take! I'm not one to bash the drugs, either.. I know the clinical trial drug I was in REALLY helped! But then again, it'll be another couple of years before it's approved, and who ever knows if one can wait that long before diving in to other treatments! Good health to you!