Ocrevus month, yay

So July 18th was my 2nd fulldose Ocrevus infusion, or my one-year anniversary. I was overdue, I think, but it'd also been a wildly stressful summer at work and psychologically. I felt i was fading mentally as well, but who knows with the south Texas heat!

Nothing much happened, except I find myself annoyed by the infusion center's noise in the morning. Pretty much a standard infusion--first hour or so minor chills, then it went away. I'm more annoyed my neuro is retiring, so now I have to jump hoops with another neuro who founded the "ms center" at my hospital, though I can't tell they do research or really anything else. She's much younger than my last neuro, with only a few publications, and that does give me pause. I guess I should feel fortunate the nurse is remaining! :)

I hope others have been able to get on and find Ocrevus useful. It's useful for me, though I do think I may have progressed a little bit. I'm definitely more annoyed by the whole MS thing than I ever have been before, even when I had to use a cane all the time. Go figure. The worst part is just feeling like no one understands.  But I think many others out there feel me on that!

I love the little teddy bear bandage! :)

Ocrevus full dose #1

3.5 hours in to my first full dose of ocrelizumab. Going well, and happy to have everything align so I can get it done. Brief delay due to our ridiculous ice storm in San Antonio!  But all goes well now.

I have been more than usually tired and I'm guessing this will help out. A little leg weakness as well, but most recent MRIs are stable. Now, I did test positive for JC virus antibodies, but it's pretty low. I'm being pretty positive about the MS drugs--though I'll add modafinil is not working well for me. May have to go back to the speed--er, d-amphetamine salts for lassitude.

Again, a 10.00 copay due to the pharma company's initiative. EXCELLENT. I would recommend anyone trying to get this to look into the program. It goes on forever, as long as you are eligible. Seems most are eligible, but it's also helpful to have a good MS nurse working with your neuro to get the hoops out of the way.

Another hour or two. And I'm starving. But they have a keurig and snacks, so it's not half bad.  Y'all enjoy the day!