So for two years I organized a zumbathon to raise MS funds in March. This month, no such plans, but I find myself hyperaware of my MS.
I'd been doing fairly well, got off Plegridy because of really uncontrollable side effects, still taking adderall to cope with fatigue. but the last couple of days the fatigue has ramped up into lassitude and I can't even drive and sing along to music in the car because I get SO tired! Walking is ridiculous, as it takes a huge amount of energy to go anywhere more than about 20-30 feet.
I'm trying crutches now, but they are jarring and it's still quite tiring. Of course, having a job that requires thinking also wears me out. We will see if I make my night class tonight.
Ironically, I'm revisiting disability as subject for research, spurred by rediscovering Lionel Barrymore. He was in a wheelchair in films from about 1938 on, and did a whole hoop of films prior to his death in 1954. I've loved his brother John since probably my early teens, but hadn't paid much attention to Lionel except in Grand Hotel until recently. I have been youtube-ing films and find myself fascinated by him. Quite a good, interesting actor. So I'll be looking closely at Key Largo (1948) and how his wheelchair plays a role in different ways. Already know another scholar has done wheelchairs in film and even got an nice response to my email to him. That was quite kind, actually.
I've already worked on John Callahan and Dr House, and I find it funny I knew about but didn't make the connections with Dr Gillespie in the Dr. Kildare movies of the 40s. Once more, Lionel Barrymore as Dr G! It's nice to have my brain focused on something specific. I do love research.
But OH, how I'm hating this terrific weakness/tiredness. We will see if the dr is up to seeing me or if I should just invest in that energy-saving wheelchair thing.